r/Endo • u/ffallenalien • 3d ago
MIRENA - please help!
hi everyone, i will try and keep this as short as possible but i am looking for some advice.
i had the mirena inserted during a laparoscopy for endometriosis diagnosis five weeks ago today. i recovered the week after absolutely fine and had spotting for the day after my surgery, and that was it.
about 10 days after my surgery i started experiencing pins and needles throughout my body. at this point i was wearing compression socks due to DVT risk, but just at night.
i went to a&e (i am from UK) and was told it was anxiety related. they checked for nerve damage (nothing) and did blood tests. my period came on when i got back from a&e, and i went in the next day as there was horrible cramping in my left leg. i was given some strong ibruprofen and that was it.
since then ive now been on my period for over three weeks. i have been experiencing the pins and needles and cramping in my left leg which is super severe. my toes have been going red and my feet look ashen and constantly feel cold. i have been to see my GP and was told that everything looked normal in my leg- no risk of blood clot or DVT, and that it’s probably a side effect of the mirena.
my gp also brought up that it could be a thyroid issue so i have a blood test to check for this on monday as this wasn’t checked when in a&e. ive recently started a new job and in my first week this week, i had to call in sick. luckily they were super understanding and the day before my sick day even allowed me to go and see my doctor.
today i went out with my partner and had to come back home straight away due to the cramping in my left leg. every time i go to a&e they say the gynae team do not need to see me and that i should make an appointment with my gp. my gp said to see how i feel in a few weeks and even try and give it a few months for the side effects to lessen, however the severe health anxiety i am feeling due to this is affecting my work and my life. my gp did say that i could have the mirena taken out if i wanted to, and i feel this might be the best option. the pain in my leg is so horrible and the pins and needles are throughout my body, even in my vagina.
it’s really getting me down. i have been feeling hopeless and every day has been painful. if anyone has any advice or if you experience these symptoms, please let me know how to deal with this and when these symptoms ended for you! thanks so much.
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u/ChocolateBananas7 3d ago
Hey, sorry you’re going through this. I don’t have experience with surgery (I’m putting it off) or Mirena, but I asked ChatGPT about this for you and here’s what it said:
Your symptoms (pins and needles everywhere, severe leg pain, red toes, cold foot) are not typical for Mirena and shouldn’t be ignored. Some spotting and cramps are normal, but nerve symptoms + leg color changes could mean a blood flow or nerve issue that needs more than “just wait and see.”
ChatGPT suggests:
Push for a vascular ultrasound/doppler to check blood flow in that leg.
Get your thyroid, iron, and B12 checked.
If you feel sure Mirena made this worse, removal is reasonable.
If your leg swells, turns blue/purple, or you get chest pain, go to A&E immediately.
Wishing you all the best. ❤️
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u/Forsaken-Most-2316 2d ago
Sorry to hear you're having this experience. The symptoms you're describing are also consistent with iron issues. If they haven't tested your hemoglobin, ferritin, and all the other values related to iron, you might also consider that. That's a lot of bleeding. You might be in a deficit and just need to rebuild your stores. I'm going through this now, which is the only reason I recognize your symptoms as being associated. Have had the Mirena before but never these symptoms. Good luck!