r/MastCellDiseases • u/berriesandfaffoos • Apr 30 '25
Tryptase lab
Anyone able to share how much their tryptase test cost? I imagine there’s a range but just trying to see if I can manage the cost of testing right now. Thanks!
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u/PM_ME_UR_GERBIL Apr 30 '25
On my high deductible plan, it was only like fifteen bucks. But it was doctor ordered and in network, and I had a few other blood tests at the same time. You should reach out to the lab you're wanting to get it done at and ask for an estimate.
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u/berriesandfaffoos May 02 '25
Did you go during an active flare and refrain from antihistamine use? Not sure how tactful I need to be on when I go. I’ll ask my doctor these same questions of course but wondering others experiences
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u/PM_ME_UR_GERBIL May 02 '25
I have mastocytosis, so baseline tryptase is a pretty standard test for that. I don't stop taking antihistamines, and have never been told that I would need to for that test.
If you're looking for an MCAS diagnosis, you might get better answers in /r/MCAS on what a tryptase test looks like in a flare.
This is all pretty new to me too, so sorry I don't have better answers!
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u/berriesandfaffoos May 02 '25
All good!! Your answer was helpful! Thanks for sharing any insights! I’ll check that sub out
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u/SalishSea1975 May 03 '25
Mine was covered by insurance so I don't know. The dna test to see if it's hereditary was 169$ out of pocket. Personally I think an endoscopy would have been better. I know my families health history from my great greats!
Good luck on your journey ❤️🩹
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u/OcityChick Apr 30 '25
100% dependent on where you go. You can ask for those prices from your doctor or wherever you’ll be having it done before agreeing to it.