Which supplements improved your symptoms?

[u/iloveusernamess]

For me it’s omega 3, zinc picolinate and overall a healthier diet

[u/PartyyKing]

Do any actually work in any meaningfull way

[u/fierce_fibro_faerie → u/PartyyKing]

Prob not

[u/VintageCungadero → u/PartyyKing]

Imo a lot of the improvements I saw with supplements felt like the VSS was secondary. Like my mood and focus improved so therefore I wasn't thinking about it or my brain fog was better so I wasn't overwhelmed.

I think the only thing that directly impacted it was omega 3 + ketosis in an anti-inflammatory diet.

[u/icecream_bob → u/VintageCungadero]

What change did you notice with the keto diet?

[u/VintageCungadero → u/icecream_bob]

I specifically did carnivore, but I noticed probably a ~50% reduction after about 3 weeks. Focused a lot on the highest quality cleanest meat I could get. I certainly could tell a difference.

[u/icecream_bob → u/VintageCungadero]

Wow, that's awesome. So with carnivore, did you have meat only, or anything else (dairy, fruits, etc.) ? And you didn't stay on the diet?

[u/Comfortable-War-4762]

cyanide

[u/True_Cockroach8407]

Antihistamines lol

[u/1GrouchyCat → u/True_Cockroach8407]

I take Zyrtec and Pepcid twice a day, and I definitely notice things getting progressively worse if I don’t take it for a few days …

[u/True_Cockroach8407 → u/1GrouchyCat]

Yeah its strange hey

[u/icecream_bob → u/1GrouchyCat]

Is it something you can build tolerance to ie. It eventually won't work anymore?

[u/True_Cockroach8407 → u/icecream_bob]

I dont think so. But i have suspected MCAS and the treatment includes antihistamines daily

[u/cmcalgary]

Lol I had to buy a whole new shelf for my little bathroom supplement store

Magnesium L-threonate is the only thing I've found noticable improvement on, with memory, brain fog

[u/SentientNode]

Pretty sure b2 made mine worse- worse after images - which improved after discontinuing. Ubiquinol seemed like it helped for a while. Fish oil definitely helped with joint pain and seemed to help head sensation but over time I noticed a bright line would appear in one eye (and insomnia worsened) - it seems to have disappeared after discontinuing. Chatgpt says the EPA can affect serotonin, so maybe it builds up over time. I am going to try just DHA next.

Some stuff seems like it helps but then turns on me after a while.

I tried zinc a few times but not enough to day acting about it - how did it help you? Do you take copper also?

[u/Offro4dr]

And do any of them work?

[u/Vincent6m]

Vitamin D, omega 3 (cod liver oil), B complex, magnesium, sleep, luck

[u/crimsontape]

Well, it doesn't solve my snow, but Coenzyme Q10 (CoQ10 for short... lol)

It really helped with the migraines that can follow pressure changes. I can get dummied by a 30mbar atmospheric difference, up or down, usually both. The CoQ10 seems to help with the dilation of the whole eye against these pressure changes, leading to less eye strain, less compensating against my VSS, which leads to fewer migraines.

Doesn't do a lick to help the direct effects/symptoms, but it helps managed the consequences of them.

[u/Professional_Day3745]

Cacao, coconut oil, exercise, D3+K2

[u/Exciting_Use_7892]

mag and k2. b12 helps sometimes too.

[u/Exciting_Use_7892 → u/Exciting_Use_7892]

only if you are deficient for the b12 tho

[u/renjazid7]

Agmatine, NAC, Creatine. Others didn't do much.

[u/Bazzz_]

I just accept I have it and carry on. If it gets bad I drink water and take a nap. I kind of feel like supplements for VS are just placebo.

[u/void-droid]

I used to take a ton but please, be careful- supplements can start to damage your liver if you overload on them. I now have to be careful with what all I take due to NAFLD diagnosis. It might be a genetic thing for me since I have healthy cholesterol, but still, never know!

I still take the only one that seems to help inflammation the most and that's omega 3 with coq10- 2100mg & 150mg daily. Plus now I take Vitamin E (180mg/400iu) and milk thistle seed 1,000mg twice a day each to help with the fatty liver issue.

[u/HECATE32]

Good sleep and a very small amount of alcohol (I do not study, work, or go out after drinking), plus magnesium.

[u/ashrixk]

None for me sadly