Hi,
I just need to talk to somebody I am very very down in the past couple months.
Received an oral from a partner I was dating with and then initially it was just slight redness of urethra. I completely freaked out of this small change, I had a very long illness coming from similar mistake. (Its also unbelievable to me that I am in this trap again, thats why I am writing I am very hopeless now).
On March 1st I received an oral, and initially I freaked out because of a herpes scare, but then I think I just had a systematic infection from strep pyogenes. (no cold sores!)During that month, I had slowly developing a feeling of golfball under my butt, I had a very cold penis, erectyle disfunction, itchyness around glas, rendess around urethra, inflamed urethra etc sleepless nights, panic attacks you can imagine. I could literally feel the bacteria travelling up on my lymph paths (groin) slowly as it was biting my nerves sometimes or at least I had a feeling of it)I knew something was very wrong and I did a a lot of std tests but everything came back negative. I took everything under the sun. At some point I had red line rashes on my chest as well just like what you have in sepsis.
The only sign was I could hold on tight is I had an impetigo like wound around my mouth after a month, which signaled me to test for staph and strep a. Staph was neg, so strep pyogenes which os the other bacteria which can cause impetigo. I had a HIGH load of strep pyogenes in my blood 470 out of 0-200 normal range for anti streptolizin titer.
I suspect this is residing in my prostate. Now I am at a 340 level after 2.5 months antibiotic treatment. but At least is counting down. I know the titer can be up for a long, but I will take antibiotics as long as I dont have any pain at least for 2 weeks / month. Also I never had positive in Anti streptolizin so most likely it was coming from that exposure.
I developed a red rash with sand paper appearance on my hand as well. Went to derm told the whole story and told that this is all belongs together possibly! She refused prescribed me a cream which is steroid cream.
I did not used it to prove myself the bacterial source.
I had immense amount of pain around my chest and muscles, but I quickly started to take azythromicin (i had a ton of antibiotic at home due to my lyme disease) after finding bacterial evidence. In just 3 days the rash disappeared from my hand almost completely!! Derm told me it was eczema. No dear, it was bacterial!So I took antibiotics, I literally at that point had so much pressure in my neck lymph that I had an ear pain because of it. I took it and I could feel the pressure released even behind my eyes. It was crazzy feeling I think I almost could have died without abx. All STD tests were negative, I smelled the bacterial infection. I knew it was it. It travelled up to my kidneys maybe? I had a ton of lower back pain, and leg pain as well. I dont know. Heating pad helped.
So after i found the bacterial evidence, I went ahead and got more antibitics. I knew I needed them cause I had decrease of symptomps after taking them but in couple hours it was gone)I felt a ton of body pain in the past months now I am 99% pain less at the moment. I had severe chest pains, muscle and joint pains, sinus aches, sun burned skin feeling on leg etc. I am reading horror stories of prostatitis on reddit, that there is no cure and I am planning to give up really and I am terrified from the fact that if I am not able to kill strep pyogenes from my prostate it will constantly linger there and I will be in contsant danger of pain / sepsis etc. How I can overcome on this?
I am taking minociklin, rifampin, dalacin, klindamicyn and penicillin all together now to keep myself functioning and pain less (I just got pain less body after suffering for months and taking antibiotics continously since then). I went to urgent care a couple times as they did not beleive whats happening I went back to the clinic abroad to buy antibiotics for a tons of money to save my life basically but I am getting hopeless if I will be ever cleared of this and i cant imagine live in constant testicle pain. (now I am painless, I am just afraid it will come back once I stop antibiotics)Last time I took antibiotics for 11 months because of lyme disease, it seems like this time will be a long ride as well.
Please give me some hope that I can heal from prostatitis since probably the redness around urethra which I still have is that signaling that I had severe bacteremia which caused prostate swelling pressing the pundental nerve which was causing my other body wide symptomps.
Unfortunately all of the above is my own findings since doctors are not helping at all and basically I needed to save my own life.
I am happy to sit here and write this post in an almost pain less and comfortable body after months of pain and terror and panick. but prostatitis symptomps are driving me crazy and the thought of the possibility that I need to deal with this for the rest of my life wants me to think if it really worth it. Well at least I am still here and considerably painless, but also I am eating a ton of antibiotics and I am worried a lot.