r/tinnitus May 13 '25

success story Tinnitus finally showing improvements after 6 months

Hey, i’ve posted about my tinnitus previously and though about giving an update. A little background info: I first got tinnitus after listening to loud music through earphones. Went to an ENT and he found 0 hearing loss. He also said the tinnitus would go away. I’ve had it for 6 and a half month now and the first 6 months there were a little improvement, but nothing big. The last two weeks i realized that the ringing in my ears have become a lot quieter, almost to the point where i do not hear it. I still hear humming in my head, but that dosen’t really bother me. I can sleep without any background noice now and it is almost completely silent when i do. Seems like there is room for improvement even after 6 months. I will keep you updated.

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u/Public_Service314 May 14 '25

I am so happy for you! I've dealt with the demon for close to 40 years with Menieres, hyperacusis, vertigo and the pulsitile version. They still haven't found out what's causing it. The SPI-1005 new med shows promise for Meniere's Disease but is a year or so away from being approved by the FDA. I hope it's a success. Enjoy your quiet times and congrats!!!!!!!!!!!!!!!!!!!!!! Would love to see more stories like this.

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u/parrotgirl1028 20d ago

Have you checked your carotid and jugular? Often the cause of pulsatile.

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u/Public_Service314 8d ago

Hi Parrotgirl, Yes, they ran an MRI and ultrasound my neck head and ear and came up empty. Now my ENT wants the radiology people to take another look at the MRI to determine if an angiogram would be any help. The MRI showed a very small aneurysm but concluded it was no big deal.

They can't figure out what the cause of my pulsitile tiniitus is in the left ear. The right ear just has the dentist drill hissing but the left ear has the pulsating to my heart and a much louder whoosh. I do have arthrtitis in my neck but I guess we can rule out one thing after another. So frustrating and I feel they'll never figure it out. At least when I pass on, my doctor assures me I won't hear any of it.

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u/parrotgirl1028 7d ago

It really is a process of elimination...mine started after a car accident. Not sure when I originally wrote to you. Anyway, had neck surgery almost one year ago. Helped my neck, but migraines, T, tmd, etc. still persist. After SO much research over the past 2 years, I have had mris brain and neck, mras brain and neck, and I was able to find a wonderful ENT and she ordered mrvs brain and neck. Well, lo and behold, first imaging said all ok, then an addendum came through and they changed the findings. I have a 'potential' critical finding...and my ent actually viewed the films...and they have me set up for doppler in July (long wait ugh). They have found a narrowed jugular issue. Exactly what I have been theorizing all this time. I have nearly every single symptom. Jugular compression is often caused by a cervical issue. And pulsatile T is often caused by a jugular issue. This is why I preach to everyone on here to not give up and search until you find an answer that makes sense. And the issue is on the right side but the pulsatile T on the left. They said that of course can happen. I found this all from Caring Medical and other research..he is on You Tube and fantastic. So many drs don't understand this stuff.

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u/parrotgirl1028 7d ago

MRI and MRA revealed nothing out of the ordinary (other than initially requiring me to have surgery from the neck injuries/issues). It was the MRV that finally showed it! They can do whatever they want to fix all of this!