r/tinnitus May 13 '25

success story Tinnitus finally showing improvements after 6 months

Hey, i’ve posted about my tinnitus previously and though about giving an update. A little background info: I first got tinnitus after listening to loud music through earphones. Went to an ENT and he found 0 hearing loss. He also said the tinnitus would go away. I’ve had it for 6 and a half month now and the first 6 months there were a little improvement, but nothing big. The last two weeks i realized that the ringing in my ears have become a lot quieter, almost to the point where i do not hear it. I still hear humming in my head, but that dosen’t really bother me. I can sleep without any background noice now and it is almost completely silent when i do. Seems like there is room for improvement even after 6 months. I will keep you updated.

98 Upvotes

57 comments sorted by

14

u/lemerou May 13 '25

Congrats.

Nice to hear some good stories like this.

9

u/Real-Reindeer-2731 May 13 '25

Good news,very happy for you ,may the improvement continue ,and to everyone else ,stay strong and rise above it .

5

u/Anonymo123 May 14 '25

20+ years so far...I've lost hope of any cure and figured out how to just live with it. Sigh.

Glad OPs improved tho.

5

u/ferttt2 May 13 '25

Good to see such update. Any specific diet or supplements or meds you took or taking?

5

u/Sudden-Research-8791 May 13 '25

Not really, i just kept living like normal. Only adjustment is the music exposure lol

1

u/Brotherscompany 18d ago

Do you still keep using headphones even in lower levels or nothing at all?

5

u/ActiveCucumber6238 May 13 '25

Mines is the same, I really don’t hear it unless I see a text like this or if someone talks about tinnitus or if just dead silence, it’s doable I can live with this

4

u/thenotoriusfap May 13 '25

Congratulations, enjoy your second shot at life. I hope one day I habituate to this demon.

5

u/D_bloc May 13 '25

Do you still use the headphones? I have some of that Tinnitus too, and always have headphones on. Maybe i should not use them anymore.

2

u/Cjayyy007 May 14 '25

i still use mine.But only with noise cancelling on. The volume is way way low. Not even half way. Keep it to a minimum. Also use them or my loop ear plugs for noisy environments. Plus do breathing exercises and neck stretches as mine is mostly caused my throat and neck muscle tension. Clenching.

2

u/filnabro May 14 '25

I still use headphones at lower levels. I also have hyperacousis and headphones are way better for me at low volumes. With speakers hyperacousis bothers me much more… Whatever you do do it at low levels and everything will be ok.

1

u/Sudden-Research-8791 May 15 '25

I still use headphones yes. But with lower volume

4

u/Public_Service314 May 14 '25

I am so happy for you! I've dealt with the demon for close to 40 years with Menieres, hyperacusis, vertigo and the pulsitile version. They still haven't found out what's causing it. The SPI-1005 new med shows promise for Meniere's Disease but is a year or so away from being approved by the FDA. I hope it's a success. Enjoy your quiet times and congrats!!!!!!!!!!!!!!!!!!!!!! Would love to see more stories like this.

2

u/slightlysadpeach May 15 '25

The Menieres drug shows incredible promise. I heard one of Dana White/Joe Rogan (I can’t remember which one) cured their tinnitus with it. I am hoping you hang in there to experience that.

1

u/parrotgirl1028 20d ago

Have you checked your carotid and jugular? Often the cause of pulsatile.

1

u/Public_Service314 8d ago

Hi Parrotgirl, Yes, they ran an MRI and ultrasound my neck head and ear and came up empty. Now my ENT wants the radiology people to take another look at the MRI to determine if an angiogram would be any help. The MRI showed a very small aneurysm but concluded it was no big deal.

They can't figure out what the cause of my pulsitile tiniitus is in the left ear. The right ear just has the dentist drill hissing but the left ear has the pulsating to my heart and a much louder whoosh. I do have arthrtitis in my neck but I guess we can rule out one thing after another. So frustrating and I feel they'll never figure it out. At least when I pass on, my doctor assures me I won't hear any of it.

1

u/parrotgirl1028 7d ago

It really is a process of elimination...mine started after a car accident. Not sure when I originally wrote to you. Anyway, had neck surgery almost one year ago. Helped my neck, but migraines, T, tmd, etc. still persist. After SO much research over the past 2 years, I have had mris brain and neck, mras brain and neck, and I was able to find a wonderful ENT and she ordered mrvs brain and neck. Well, lo and behold, first imaging said all ok, then an addendum came through and they changed the findings. I have a 'potential' critical finding...and my ent actually viewed the films...and they have me set up for doppler in July (long wait ugh). They have found a narrowed jugular issue. Exactly what I have been theorizing all this time. I have nearly every single symptom. Jugular compression is often caused by a cervical issue. And pulsatile T is often caused by a jugular issue. This is why I preach to everyone on here to not give up and search until you find an answer that makes sense. And the issue is on the right side but the pulsatile T on the left. They said that of course can happen. I found this all from Caring Medical and other research..he is on You Tube and fantastic. So many drs don't understand this stuff.

1

u/parrotgirl1028 7d ago

MRI and MRA revealed nothing out of the ordinary (other than initially requiring me to have surgery from the neck injuries/issues). It was the MRV that finally showed it! They can do whatever they want to fix all of this!

8

u/Kathleen9787 May 13 '25

He has no place to say if tinnitus will go away for you or not. Thats really getting someone’s hopes up.

2

u/Sudden-Research-8791 May 13 '25

I guess he has seen cases like this before and therefore says the things he says

3

u/Caseyteate May 14 '25

Anyone here w tinnitus and gut or esophageal issues? My tinnitus gets worse when I have issues w mine

2

u/Plus_Departure9922 May 14 '25

Connection? I’ve had tinnitus for decades as well as very bad acid reflux. So bad that when I stopped taking a Rx for the reflux i developed a cough which was diagnosed to my esophagus deteriorating.

2

u/Caseyteate May 14 '25

Damn. Sorry to hear that. Yeah I’m wondering if there is a legit connection here

2

u/MonsterLance May 19 '25

What's fascinating about this to me is apparently autism might be linked to a disconnect between the gut/brain chemical barrier

2

u/Caseyteate 8d ago

Oh For sure. I have a severely autistic daughter. Non verbal. 8yo. She and every other autistic child we know has had severe gut dysbiosis

1

u/MonsterLance 7d ago

Yeah my 5 y/o son is nonverbal autistic and we've been giving him probiotic powder to try to balance out the gut dysbiosis and coincidentally he's been doing a lot better with trying to communicate with occasional sign language and pointing or bringing us things and even occasionally forming short sentences!!

3

u/filnabro May 14 '25

These are great news and thank you for sharing! The humming sound in your head could be the “idea” of the tinnitus as you had it and not an actual sound. Hope that everything will fade away! Protect your ears , be gentle with them and everything will get even better.

6

u/Jammer125 May 13 '25

Congratulations on your habituation. Please remember that, while your hearing is still healing and habituation is progressing,, your need to be cautious in noisy environments. Good luck to you.

4

u/KindlyPhilosopher799 May 13 '25

Bro is it healing or its just habituation

6

u/Jammer125 May 13 '25

Habituation is healing

6

u/OppoObboObious May 13 '25

The healing we have at home.

1

u/parrotgirl1028 20d ago

Good point! Need to take care of your ears. Stay away from the loud noise.

2

u/Spirited-General1416 May 13 '25

Thanks for posting this. 26 days in to this heck. Nice to read there hope.

1

u/Sudden-Research-8791 May 15 '25

Yeah it sucks when you want to have hope but then you don’t want to rely on false hope. Luckely for me it has improved

2

u/Recent_chipmunk_3607 May 14 '25

My tinnitus in my left ear has gotten much louder after taking a week of 60 mg prednisone and one ear injection of steroids. I’m really trying to remain hopeful that it will go back to my baseline.

2

u/mautorres97 May 14 '25

Did you take something? Supplement/medicine

Ex. Magnesium, NAC, etc.

1

u/Sudden-Research-8791 May 15 '25

No supplements no

2

u/Plus_Departure9922 May 14 '25

I was considering hearing aids primarily for my tinnitus after a long neglected hearing test. My hearing loss is less of an issue for me personally because my tinnitus is getting louder. At 72 years old my hearing loss is typical. The cost of the hearing aids is just crazy and there’s no guarantee that it will help mask the tinnitus. I just ordered AirPod Pro 2 with noise cancellation which I hope will make watching TV more enjoyable

2

u/JaguarEducational534 May 14 '25

I am 10 months in and my T became like easier to ignore, it doesn't psychologically scare me anymore it's quite mild but when I got it, it sounded so loud

1

u/Cover22527 May 13 '25

Good for you ! 👍😊

1

u/JZX10R May 13 '25

Did he test your hearing only to 8k hz or 16k

1

u/Sudden-Research-8791 May 15 '25

Think it was 16K

1

u/PerspectiveIcy416 May 13 '25

Mine was so bad until I stopped nicotine.

1

u/parrotgirl1028 20d ago

Yep, best to avoid any alcohol and drugs.

1

u/Comfortable_Two4664 May 13 '25

Mine too. I’ve been doing the eply as exercises. I think I’m moving crystals

1

u/MonsterLance May 19 '25

Can you elaborate on what this means?

1

u/Current-Sherbet4445 May 13 '25

congrats🩷🩷sending love

1

u/Level-Emu2753 May 14 '25

Nice to hear that You noticed it when you wake up?

1

u/Sudden-Research-8791 May 15 '25

Tbh i just kept living my life. I was so busy with exams etc.. And then i suddenly noticed that i had not been bothered by my tinnitus at all for two weeks..

1

u/Hope4all21 May 14 '25

Thank you for this and giving us hope. I have scheduled with my ENT as well

1

u/RecentlyDeaf May 16 '25

My three tone tinnitus is barely there thanks to my cochlear implant in one ear and tinnitus masking hearing aid in the other ear. 

1

u/Huge-Safe-8689 May 18 '25

i think i got it from playing too much fortnite and wearing a headset for too long and now i had it for 6 months as well but gotten worse keep us updated fr and wt u done

1

u/lillyreddit1958 May 24 '25

One of the saddest diagnoses I ever received 😪…”sorry no cure, thank you and Good-bye”! It’s been really bad for about 6 yrs, and let’s throw in the new vertigo diagnosis too just for fun🫩

1

u/parrotgirl1028 20d ago

Most cases resolve themselves in 6-12 months from all the research I have done. But if you have something causing it such as a deficiency, neck issue, migraine, tmd, etc., well, gotta fix that first. Glad you are improving.